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Product details
File Size: 1699 KB
Print Length: 480 pages
Publisher: Sisters Media, LLC (March 14, 2016)
Publication Date: March 14, 2016
Sold by: Amazon Digital Services LLC
Language: English
ASIN: B01CZUBNL2
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Amazon Best Sellers Rank:
#80,971 Paid in Kindle Store (See Top 100 Paid in Kindle Store)
I have heard it for most of my 50 years. "You are puny." "Why can't you ever pass up a virus or "bug"?" "It is impossible to be allergic to that! No one is allergic to that!" "You just need to eat better and exercise!" Wrong. Wrong. Wrong. God Bless Dr. Afrin for not only confirming that there really is a reason behind my complicated medical history but for having a plan to deal with the complexities of Mast Cell Activation Syndrome. As a person, Dr. Afrin is without a doubt, one of the kindest, gentlest and most compassionate souls I have yet to meet. The book is fantastic as a medical resource for my regular phycians and also for me, the patient. I bought copies for the other doctors I see, egos be damned! I handed each doctor their book and said, "This is me." What a wonderful feeling! This is ME and this is how we are going to get me to the best me I can be!
Amazing book… as a registered nurse I am pretty used to hearing medical terms-- which understandably confuse people who are not in the medical field. Sometimes I don't even know what physcians are talking about and it is frustrating!!This book is very good because it is written in normal language so everyone can understand. Mast cell activation disorders are becoming more and more common and people go for years without a diagnosis. I am impressed and grateful that this doctor cares this much to base his practice on this horrible disease and condition. The good news is… There is hope. So if you have been struggling with pain and chronic conditions and have not found an answer… I highly recommend you look into a mast cell disorder with an allergy doctor or a hematologist. Our society is full of allergies these days that did not exist 50 years ago… Kids and adults. It is not just itching and hives like we have been led to believe… It can be so much more.Unfortunately I think it's going to just continue to get worse and I'm glad that there is attention being paid to it because they're going to be a lot of patients who need it. Highly recommend read!
As a German Ehlers-Danlos Syndrom patient which has many comorbidities I highly depend on english literature because that is the only way how I can find out more about treatment options and therefore improve my overall well being.Dr. Afrin is a world expert when it comes to mast cell activation syndrome and I was very happy when I saw he had written a book about all of his experiences.His book is completely different from what I had expected at first. Since I am reading every piece of literature that the very few specialists publish about mast cells I thought there could not be many surprises in this book. But I was totally wrong. While reading the patient stories there were many symptoms I too had experienced but that never anyone could explain to me. And now everything made sense. And keep in mind that I am already diagnosed with mast cell activation syndrome, and still every doctor I asked could not explain all of my problems. Dr. Afrin did, in only one book.It took me a while to merge with Dr. Afrins writing style because it is very different from what I usually read. At some points it is quiet confusing how he jumps from one patient story to his own thoughts and back. But after a short time it was even exciting for me to not know where this story goes and whats next. There even were some laughter in the book and I was able to finish it after only 5 days. Medical literature usually takes me longer than that.He gives a lot treatment options, plus he lets us all know what his personal experiences with those treatments are. Now even so far unexperienced doctors who have mast cell patients can access those information and maybe are able to treat us better.I also liked the way he made it possible for both, medical professionals and patients, to understand the content of the book. I have not read many medical books were doctor and patient can benefit from the information in it.What I also really like is how he has a patient story to every organ system or symptom that could possibly occur and how he is not scared from telling his opinion about what is wrong with the health system. He even mentioned many times what he thinks where mast cell research goes without knowing so far. I loved being a part of his thinking process and even without knowing him I would love to be his patient.The only critic I have is that I was surprised to see that the Appendix with explanations of all medical terms in the book (which is good) was almost half of the whole book. But still the prize is very affordable for an amazing book like this and I would highly recommend it.This is the kind of doctor we need more of and that is a book with the potential to help all doctors with already diagnosed MCAS patients OR with patients with so far unclear confusing bizar chronic symptoms. I wish what he already knows might soon reach other medical professionals and help us get better treatment options.With this book he made it again possible for me to be my own specialist and to take care of my own treatment. This is not only empowering me as a patient but could also lead to my doctor being more confident in treating me.
Great book for anyone who has had a lifetime of weird symptoms that doctors have dismissed. After becoming a patient of Dr. Afrin's, my feelings have been validated and I no longer have self doubt. It is so good to regain some control and a better quality of life. Definitely a good read for "Zebras"!
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